ENCORE is a study exclusively for trans women and trans feminine people in the United States and Puerto Rico.
ENCORE is a team of health, research, and trans-led community organizations.
There are no national, long-term surveys for trans women, which are important to understand unique health risks for trans women, informing health programs for them, and understanding how their health and social experiences change over time.
Complete our short screening tool to find out if you're eligible to participate.
ENCORE is a study exclusively for trans women and trans feminine people in the US and Puerto Rico. ENCORE (IRB00355445) is led by a team of health, research, and trans-led community organizations, including The Black Transgender Advocacy Coalition, Trans Solutions Research & Resource Center, Arianna’s Center, Johns Hopkins School of Public Health, Duke University, Callen-Lorde Community Health Center, Emory University, University of Miami, and University of California San Diego. Our goal is to better understand the social, health, and HIV-related experiences among transgender women and transfeminine people. Participating in the study involves completing a short survey and HIV testing. We offer options to participate remotely or in-person in select cities. We'll check in with you approximately every 6 months for up to 2 years. If you're interested in participating, contact us here. Thank you for considering joining us in this important study.
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If you are eligible and consent to the study, you will complete a survey online and provide a blood specimen (drops from finger-prick) using a HIV home kit. Select cities have in-person options for completing a survey and a HIV home kit.
There may be no direct benefit to you for participating. However, we hope the knowledge gained in the study may help improve services and programs for transgender women. We provide the following in gratitude for your time and hopes that this study can be beneficial to you and others who participate
No problem! We have options - give us a call and we will find another option for you.
We protect it! Here is how:
ENCORE always chooses what is most affirming while keeping you safe and respecting your privacy. To respect your privacy, we will ask you for a name for personal communication, and separately ask for a name to be displayed on the kits we mail you. We do not need your legal name or deadname.
Your DNA and blood sample will NEVER be stored in this study. The blood sample is immediately destroyed using formal laboratory processes once the HIV home kit processing is completed by the laboratory.
Our hubs are gender-affirming research or clinical sites where you can go to complete any study activity or access associated services. They are located in New York City, Atlanta, Baltimore, Miami, Raleigh-Durham, and San Diego. You do not need to go to these hubs, but you are welcome any time for us to support you in this study and our teams would love to meet you!